Navigating Research Trends in Support and Stigma: A Bibliometric Analysis and Future Research Agenda
Keywords:
Support, stigma, health, review, future agenda
Abstract
Aim and Scope: Stigma has changed and evolved over time with the progress of knowledge and humanity. The negative outcomes of stigma, such as social isolation, exclusion, poor treatment adherence, and limited access to healthcare services, have garnered interest among research communities. The complex nature of stigma as a socially constructed phenomenon and its continuous evolution raises the need to track changes and fit future interventions. Methods: We synthesize extant research on stigma and support through a bibliometric analysis of 257 articles investigating the stigma phenomenon. The study contributes to a comprehensive understanding and helps the translation of research findings into action to drive social change and evidence-based policies. Findings: Our analysis revealed a growing interest in the domain in recent years. The results show six main directions of research: (1) stigma as a barrier, (2) cultural contexts of stigma, (3) perceived stigma and coping strategies, (4) stories of experiences of stigma, (5) action to mitigate stigma, and (6) community stigma. Conclusions: This study has theoretical and practical implications, in highlighting the multidimensionality of stigma and the need for multi-level policies to raise awareness among communities.
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References
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3. Alsabah, T., & Vittrup, B. (2017). ‘The negative effects of insufficient support Systems on Kuwaiti mothers of children with disabilities’, Digest of Middle East Studies, 26/2: 422–41. Wiley Online Library.
4. Arend, E. D. (2005). ‘The politics of invisibility: homophobia and low-income HIV-positive women who have sex with women’, Journal of Homosexuality, 49/1: 97–122. Taylor & Francis.
5. Barry, M. C., Threats, M., Blackburn, N. A., LeGrand, S., Dong, W., Pulley, D. V, Sallabank, G., et al. (2018). ‘“Stay strong! keep ya head up! move on! it gets better!!!!”: resilience processes in the healthMpowerment online intervention of young black gay, bisexual and other men who have sex with men’, AIDS care, 30/sup5: S27–38. Taylor & Francis.
6. Becker, K. L. (2013). ‘Cyberhugs: creating a voice for chronic pain sufferers through technology’, Cyberpsychology, Behavior, and Social Networking, 16/2: 123–6. Mary Ann Liebert, Inc. 140 Huguenot Street, 3rd Floor New Rochelle, NY 10801 USA.
7. Bilgrei, O. R. (2019). ‘Community‐consumerism: negotiating risk in online drug communities’, Sociology of health & illness, 41/5: 852–66. Wiley Online Library.
8. Borrás, S., & Schwaag Serger, S. (2022). ‘The design of transformative research and innovation policy instruments for grand challenges: The policy-nesting perspective’, Science and Public Policy, 49/5: 659–72. Oxford University Press UK.
9. Bos, A. E. R., Pryor, J. B., Reeder, G. D., & Stutterheim, S. E. (2013). ‘Stigma: Advances in theory and research’, Basic and applied social psychology, 35/1: 1–9. Taylor & Francis.
10. Breet, E., Kagee, A., & Seedat, S. (2014). ‘HIV-related stigma and symptoms of post-traumatic stress disorder and depression in HIV-infected individuals: does social support play a mediating or moderating role?’, AIDS care, 26/8: 947–51. Taylor & Francis.
11. Brennan, L., Voros, J., & Brady, E. (2011). Paradigms at play and implications for validity in social marketing research. Journal of Social Marketing, 1(2), 100-119.
12. Broady, T. R., Stoyles, G. J., & Morse, C. (2017). ‘Understanding carers’ lived experience of stigma: The voice of families with a child on the autism spectrum’, Health & social care in the community, 25/1: 224–33. Wiley Online Library.
13. Busza, J., Simms, V., Dziva Chikwari, C., Dauya, E., Bandason, T., Makamba, M., McHugh, G., et al. (2018). ‘“It is not possible to go inside and have a discussion”: how fear of stigma affects delivery of community-based support for children’s HIV care’, AIDS care, 30/7: 903–9. Taylor & Francis.
14. Cardon, A., & Marshall, T. (2021). ‘To raise a child with autism spectrum disorder: A qualitative, comparative study of parental experiences in the United States and Senegal’, Transcultural Psychiatry, 58/3: 335–50. SAGE Publications Sage UK: London, England.
15. Chan, R. C. H., & Mak, W. W. S. (2019). ‘Cognitive, regulatory, and interpersonal mechanisms of HIV stigma on the mental and social health of men who have sex with men living with HIV’, American Journal of Men’s Health, 13/5: 1557988319873778. Sage Publications Sage CA: Los Angeles, CA.
16. Chang, P. F., & Bazarova, N. N. (2016). ‘Managing stigma: Disclosure-response communication patterns in pro-anorexic websites’, Health Communication, 31/2: 217–29. Taylor & Francis.
17. Chen, X., Xu, J., Chen, Y., Wu, R., Ji, H., Pan, Y., Duan, Y., et al. (2021). ‘The relationship among social support, experienced stigma, psychological distress, and quality of life among tuberculosis patients in China’, Scientific Reports, 11/1: 24236. Nature Publishing Group UK London.
18. Chong, E. S. K., Zhang, Y., Mak, W. W. S., & Pang, I. H. Y. (2015). ‘Social media as social capital of LGB individuals in Hong Kong: Its relations with group membership, stigma, and mental well-being’, American journal of community psychology, 55: 228–38. Springer.
19. Clarke, C. L., Wilcockson, J., Watson, J., Wilkinson, H., Keyes, S., Kinnaird, L., & Williamson, T. (2020). ‘Relational care and co-operative endeavour–Reshaping dementia care through participatory secondary data analysis’, Dementia, 19/4: 1151–72. SAGE Publications Sage UK: London, England.
20. Cluver, L., & Orkin, M. (2009). ‘Cumulative risk and AIDS-orphanhood: Interactions of stigma, bullying and poverty on child mental health in South Africa’, Social science & medicine, 69/8: 1186–93. Elsevier.
21. Coleman, H., Peterson, C. L., & Walker, C. (2022). ‘Understanding the experiences of stigma in relation to social support among an Australian community cohort of people living with epilepsy’, Australian Journal of Social Issues, 57/4: 920–37. Wiley Online Library.
22. Craig, S. L., Austin, A., & Alessi, E. (2013). ‘Gay affirmative cognitive behavioral therapy for sexual minority youth: A clinical adaptation’, Clinical Social Work Journal, 41: 258–66. Springer.
23. Denhart, H. (2008). ‘Deconstructing barriers: Perceptions of students labeled with learning disabilities in higher education’, Journal of learning disabilities, 41/6: 483–97. Sage Publications Sage UK: London, England.
24. Donovan, R., & Henley, N. (2010). Social marketing and social change. In Principles and practice of social marketing: an international perspective. 1–22. Cambridge University Press.
25. Donthu, N., Kumar, S., Mukherjee, D., Pandey, N., & Lim, W. M. (2021). ‘How to conduct a bibliometric analysis: An overview and guidelines’, Journal of Business Research, 133: 285–96. Elsevier.
26. Earnshaw, V. A., Watson, R. J., Eaton, L. A., Brousseau, N. M., Laurenceau, J.-P., & Fox, A. B. (2022). ‘Integrating time into stigma and health research’, Nature Reviews Psychology, 1/4: 236–47. DOI: 10.1038/s44159-022-00034-2
27. van Eck, N. J., & Waltman, L. (2014). Visualizing Bibliometric Networks. Measuring Scholarly Impact. DOI: 10.1007/978-3-319-10377-8_13
28. Elliott, G. C., Ziegler, H. L., Altman, B. M., & Scott, D. R. (1982). ‘Understanding stigma: Dimensions of deviance and coping’, Deviant Behavior, 3/3: 275–300. Routledge. DOI: 10.1080/01639625.1982.9967590
29. Elsevier. (2020). ‘Content Coverage Guide’, 1–24.
30. Gaur, A., & Kumar, M. (2018). ‘A systematic approach to conducting review studies: An assessment of content analysis in 25 years of IB research’, Journal of World Business, 53/2: 280–9. DOI: 10.1016/j.jwb.2017.11.003
31. Goffman, E. (1963). ‘Stigma: Notes on the management of spoiled identity’, New York: Simon & Shuster.
32. Goffman, E. (1997). ‘Selections from stigma’, The disability studies reader, 203: 215. Routledge New York.
33. Grier, S., & Bryant, C. A. (2005). Social marketing in public health. Annual review of public health, 26(1), 319-339.
34. Gul, M., & Aqeel, M. (2021). ‘Acceptance and commitment therapy for treatment of stigma and shame in substance use disorders: a double-blind, parallel-group, randomized controlled trial’, Journal of Substance Use, 26/4: 413–9. Taylor & Francis.
35. Haas, S. M., Irr, M. E., Jennings, N. A., & Wagner, L. M. (2011). ‘Communicating thin: A grounded model of online negative enabling support groups in the pro-anorexia movement’, new media & society, 13/1: 40–57. SAGE Publications Sage UK: London, England.
36. Hatzenbuehler, M. L., & Link, B. G. (2014). ‘Introduction to the special issue on structural stigma and health.’, Social Science & Medicine. Elsevier Science.
37. Heijnders, M., & Van Der Meij, S. (2006). ‘The fight against stigma: an overview of stigma-reduction strategies and interventions’, Psychology, health & medicine, 11/3: 353–63. Taylor & Francis.
38. Hermaszewska, S., Sweeney, A., & Sin, J. (2022). ‘Time to change course in stigma research?’. Journal of Mental Health. Taylor & Francis.
39. Heslin, K. C., Singzon, T., Aimiuwu, O., Sheridan, D., & Hamilton, A. (2012). ‘From personal tragedy to personal challenge: Responses to stigma among sober living home residents and operators’, Sociology of health & illness, 34/3: 379–95. Wiley Online Library.
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Published
2025-01-31
How to Cite
Hajdini, J., Dirsehan, T., & Iaia, L. (2025). Navigating Research Trends in Support and Stigma: A Bibliometric Analysis and Future Research Agenda. European Scientific Journal, ESJ, 21(1), 1. https://doi.org/10.19044/esj.2025.v21n1p1
Section
ESJ Social Sciences
Copyright (c) 2025 Johana Hajdini, Taskın Dirsehan, Lea Iaia
This work is licensed under a Creative Commons Attribution 4.0 International License.
